Diagnosed Aug.30th 2015 on the 4th day of an 11 day hospital stay. I had just had a major reconstructive surgery to my right hip that carried a 6 month recovery, I actually looked forward to surgery day for 3 years. Finally my life can move on I thought, no more doctors appointments, no more specialist's, x-rays, pain, and MRI's. Life has a "funny" way of testing you, and I was put to the toughest test since losing my Mom just a few years before.
I woke up Aug 6th, 2015 with my left toes "numb". I use the word numb because I don't know how else to desribe it. It felt like my insides were dead, but yet if someone touched my foot I could tell that they were. Over the course of 4 days it spread to my right side, then ended about mid-waist. I was living in Alberta at the time, and visited hospitals in Calgary and Red Deer, all to be disapointed by doctors and neurologists telling me I was an "anomaly, special, a mystery", eventually telling me to go home because I "wasn't dying".
Fast forward to being in the hospital after hip surgery, in exruciating pain, my hip had been broken and flipped around & pelvis broken in 2 places. My Orthapedic surgeron asked if I was still numb from the waist down, thinking he had done a great job by fixing the "pinched nerve" that was causing the numbness. I was still numb. If it wasn't for him advocating for me I'm sure my diagnoses would have taken a lot longer, so I'm thankful for him ordering MRI's of my brain and spine. Soon after, the neurologist came to tell me, as I was sitting in the hosptial bed that "this is most likely MS". Through my own ignornace at the time I thought, well this is the begining of the end. My legs will eventually give out and I'll be in a wheelchair. She explained to me that there were different types of MS and that she was almost postive it was Relapsing Remitting Multiple Sclerosis. After the intial shock, I was relieved, there was somthing indeed wrong and now that I knew, I was ready to deal with it.
Seeing the neurologist at the MS Clinic confirmed that I did have RRMS and that she also saw an earlier lesion, it was scared over and in the balance part of my brain. My husband reminded me that shortly after we met, while my Mom had been diagnosed as termanilly ill from cancer, I was dizzy for about 4 days. No other symptoms, just really dizzy. This would have been my first relapse in 2012.
It is 2019 and I haven't had a relapse since. Challenges will always come at the most inconvenient time but being self-aware and making the nessesary changes is half the battle of a bigger battle. On Aug. 25th/18, 3 years to the day since having surgery, I rode in the MS Society's MS Bike in Gimli, not only did my cycling partner and I complete the intended 68km goal but smashed it by finishing the 90KM challenge! The feeling was indescribable! My feet are still damaged from the 2nd relapse but knowing where I was and how far I've come just gives me more reason to keep fighting, making goals & changes to be the best version of me.
I know that a relapse will come but I tell myself this isn't a bad life, it's a different one.
Check out the video that was made for the this years MS Gala! Thank you so much for letting me be a part of it :)