Life with MS is never boring unless you’re living it. It was going in a predictable pattern from last June till around September. In my professional life, hosted by Handy Circle Resources Society I am kept busy networking for them with other support hubs working towards a common goal, I also facilitate a project or two and give workshops. In July of 2015, I had gotten an email offering me a course hosted by “MakeAChange Canada” (http://www.makeachangecanada.com/) as an upgrade to a web design course I got a decade ago. I began that in September 2015 and finished in April 2016, and continued through 2017 with additional training in Search Engine Optimization, WordPress, PHP coding and Bootstrap. I now manage WordPress websites and provide a support tool to connected websites, explaned below.
Under my most important “volunteer” hat I am the Facilitator for the Prince George Multiple Sclerosis Self Help Support Group. Our group meets the second Thursday of the month from 1 to 3pm at 483 Gillette St. in Prince George between September to June. We communicate through social media, random live encounters, phone, email, text and at events hosted by the MS Society of Canada in Prince George. We consider everyone affected by MS in Prince George to be a member; anyone can contact me on MS stuff, anytime by email of on FB at our group page (https://www.facebook.com/groups/pgms.self.help/). None of us should ever feel alone, we afflicted "patients" share this condition 24/7/365 more directly than our otherwise affected personal contacts. We provide the Face of MS at events and to the public. MS means "Must Smile". Adapt, survive and move on. We had to do that recently in our local community with the closure of our local office of the MS Society of Canada. As of 2017, we re-connected with the revised Northern Regional Chapter of the MS Society of Canada and the MS Clinic of the University Hospital of Northern British Columbia. My contact information can be found on the MS Society newsletter sent out from that Chapter. This year, to close out 2017, we connected a local FB group to our FB page. If you are affected in Prince George, please connect to that group here: https://www.facebook.com/groups/pgms.self.help/. It's designed to keep us together between meetings, show agenda progress reports etc, local news of events where multiple illnesses where MS lives. 2018 saw us promoting our "Walk Team" spearheaded from our MS Society of Canada lesion Sandra Stibrany (Team leader) It can be found here, http://mssoc.convio.net/site/TR/Walk/BCandYukonDivision?team_id=99473&pg=team&fr_id=5848, you may join and help us (Yaay Team) or simply donate there in a single lump sum. 10% will be returned to Prince George to be used for our local MS community unrestricted. Come to a meeting to help decide the way it should be used.
A number of other organizations use me for my voice and tech skills under different hats including the Handy Circle Resources Society (http://handycirclepg.ca/home.html) who complete my hat of Professional Volunteer. You may be directed to this page though some verbal speech I give at Cando, The Looney Auction, The Spring Fashion Show, The Spring Wellness Expo, Senior Moments at CFIS, or number of other community public gathering, meetings and conferences I do throughout the year. I also sat on the Advisory Committee for Accessibility in Prince George until 2018, as well as promoting safe enjoyment of our needed mobility devices including all pedestrian safety through the Power Mobility Society. In my business, I can also build and maintain CSS based HTML websites, using Bootstrap and PHP as well as manage other's needed updates on WordPress. I'm presently managing 3 WordPress websites for a Non-profits and one to become my business website. Volunteer Prince George’s website (www.volunteerpg.com/), the Dome Society for our Roller Dome, which is soon to become accessible for everyone (http://pgdomesociety.ca/), Carefree Society’s website is a combination CSS front end and a WordPress site behind it (http://carefreesociety.org/). Carefree manages our fleet of HandyDART public transportation buses, I built it for a course I took through Make a Change Canada's IBDE (http://ibde.ca/) program in 2016. I do thank you for supporting those organizations, perhaps my business (http://walknroll.info) and my personal drive to help end MS!
Look below how my life is complicated in other ways, this is shared through millions of persons affected in Canada alone, individuals among the largest population of affected persons globally. The challenges are amplified for single MS'ers. Together with your support, we can end MS for the future for everyone. For more information about what the MS Society does for our local MS Community, please see their page on the MS Society of Canada's website! (https://mssociety.ca/chapter/northern-regional-chapter). That is the result of the restructuring the society did when the Prince George office closed.
Can you imagine
Having multiple sclerosis means that one morning you may not be able to walk when you wake up. Or that you may suddenly have impaired vision. Or that your memory will fail you for no apparent reason. The symptoms of MS are many and vary for everyone. It’s estimated that approximately 55,000-75,000 men and women in Canada have the disease, and every day about three more people are diagnosed.
a future without MS?
I've registered for the MS Walk because I want to do something for everyone who lives with multiple sclerosis. The MS Society is the only national voluntary organization in Canada that supports both MS research and services, and the MS Walk has been a critical part of the MS Society’s fund raising efforts for over 20 years. Proceeds from this event and others like it provide support and services to help those living with this disease, their families and caregivers. They also fund research with three primary goals: to find a cause and cure for MS, repair nervous system damage caused by MS and stop MS attacks. By supporting me, you too can make a difference in the life of someone with multiple sclerosis. I am part of the MS Walk because I believe we will end multiple sclerosis - with your help we can get there. Please give generously. Thank you!